ADVOCACY








The Lymphoma Foundation of America has a long history of advocacy on behalf of lymphoma patients and their families. We strongly support a patient's right to know the truth about the risks and benefits of cancer treatments -- whether standard, experimental, or alternative. Here's a time line that will give you an idea of our work:

2003: U.S. Supreme Court Case
We won our case before the United States Supreme Court. Veterans who develop lymphoma following Agent Orange exposure during the Vietnam War era now have the right to sue chemical companies for medical care and compensation. Lymphoma Foundation of America is the lead supporting organization on behalf of lymphoma patients who were exposed to Agent Orange.

2002: Rhode Island Residents Get LFA’s Pesticide Avoidance Tips
The Rhode Island Dept. of Health is now distributing Lymphoma Foundation of America’s guidelines for minimizing exposure to pesticides. To see these 10 steps you can take to reduce everyday pesticide risks, go to Do Pesticides Cause Lymphoma? at www.lymphomaresearch.org and see the section headed How Can I Minimize My Exposure To Pesticides?

2001: U.S. Congress Alerted to Lymphoma-Pesticide Link
The United States Senate Cancer Coalition held hearings on cancer clusters. Lymphoma Foundation of America provided testimony on the link between lymphoma and pesticides, and on lymphoma “hot spots” in many regions of the U.S. Senator Feinstein asked all of the expert witnesses to comment on LFA’s research findings, and all agreed that the link is significant. (See our Newsalerts page for LFA’s testimony.)

2000: U.S. Supreme Court Case
Lymphoma Foundation of America, the American Public Health Association, and others brought a legal case before the U.S. Supreme Court, asking that cancer doctors be allowed to prescribe medical marijuana for patients who suffer from extreme nausea and appetite suppression caused by chemotherapy treatments.

1998: March On Washington
Lymphoma Foundation of America was an official co-sponsor of The March: Coming Together to Conquer Cancer – a rally in Washington, D.C. for cancer survivors, family members, and friends. LFA also contributed a section of the Ribbon Of Hope, which was signed by thousands of cancer survivors worldwide to help increase public awareness about the needs of cancer patients.

1997: Truth In Labeling
Responding to the U.S. Department of Agriculture (USDA)’s proposal to lower the standards for organically-grown food, Lymphoma Foundation of America joined with other consumer groups in asking USDA to abandon its effort to allow the agriculture industry to place an “organic” label on food grown in sludge, toxic waste, or exposed to nuclear radiation. USDA withdrew the proposal.

1994: Consumer Protection: Milk and Dairy Products
Lymphoma Foundation of America sent a complaint to the U.S. Food and Drug Administration (FDA) concerning the dairy industry’s proposed nationwide use of bovine growth hormone (BGH or rBGH). LFA raised questions about the possible health effects of these potent hormones on cancer patients. LFA questioned whether BGH might affect cancer patients’ immune systems, especially in individuals who consume a lot of cow’s milk, cheese, or other dairy food. Nothing that BGH cows require high doses of antibiotics, LFA cautioned that the antibiotic residues in dairy food might affect cancer patients on chemotherapy, who are at risk for infections.

1992: Consumer’s Right To Know: Pesticide Alert
To help protect Maryland citizens, and especially lymphoma patients, from exposure to pesticides sprayed in their neighborhoods, Lymphoma Foundation of America began a campaign to register individuals with the Maryland Department of Agriculture’s “pesticide notification program.” The program requires that individuals receive prior warning from lawn care companies and landscapers whenever weed killers, insecticides, or fungicides are used on their neighbors’ property.

1991: First Buddy Program
Lymphoma Foundation of America established the first lymphoma “buddy” program in the United States, pairing lymphoma patients with buddies – individuals treated for lymphoma who were now recovered.

1990: Patient’s Right To Receive Medical Care
On behalf of pregnant cancer patients in the United States, Lymphoma Foundation of America filed an amicus brief and joined the American Civil Liberties Union (ACLU) in a civil rights lawsuit against George Washington University Hospital. The hospital denied a pregnant cancer patient access to life-saving leukemia treatments, because she was pregnant. The hospital then forced her against her will to undergo a risky Caesarian section, which resulted in the death of her baby. She also died from untreated leukemia and complications of the c-section. Settlement resulted in a new policy that guarantees pregnant women the right to receive cancer treatments and the right to make medical decisions affecting their pregnancies.

1987: Patient’s Right To Know
On behalf of lymphoma patients in the United States who choose to participate in government-funded clinical trials, Lymphoma Foundation of America petitioned the National Cancer Institute (NCI) to release a copy of his treatment protocol to an individual patient. The Foundation filed a Freedom of Information request on behalf of this patient, who had been denied access to MB-110 documents – which described the research and experimental treatment plan in which he was enrolled. The NCI decided in our favor, setting a precedent. Now all cancer patients are entitled to obtain a complete written explanation of the treatment protocol in which they are participating.

1986: First Lymphoma Support Group
In December, 1986, Lymphoma Foundation of America organized the first lymphoma support group in the United States. The group’s initial meeting, held in Maryland, was convened by four lymphoma patients who came together to help each other recover from cancer.


Lymphoma Foundation of America
Main Office
1100 N. Main Street
Ann Arbor, MI 48104
Tel: (734) 222-1100 | Fax: (734) 222-0044

Patient Hotline: 1-800-385-1060
Email: LFA@lymphomahelp.org

www.lymphomahelp.org

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